Cancer Articles: Re: Daughtersofmoms withBREASTCANCER My Family History

Sabtu, 06 September 2008

Re: Daughtersofmoms withBREASTCANCER My Family History

I am going through this now. I absolutely found the genetic counselor
amazing and really helpful. I tested negative for the 2 genes in both the
basic and also the arrangement test.
I was shocked to learn some risk factors, and learn about things that are
bad. For instance the amount of estrogen in your body, and also the amount
of soy you intake(it replicates estrogen)

That being said I am still at extremely high risk for cancer. I have been
asked to go to a oncologist to see about going on tamoxafin(SP). In
addition I was asked to do mammograms coupled with an sonogram every 6
months and doing an MRI every 6 months but to stagger them so I am being
checked every 3 months. I was also told to make plans to have any other
kids ASAP.

Part of me wishes that I didn't test, it left too many huge gaps. After all
they only test 2 of the 5 known genes at the moment. I plan to talk to the
oncologist about a double mastectomy, I can't imagine medications, and I
really can't imagine going and having testing done every 3 months.

I learned that the carrier of the BRACA 2 gene is 80% more likely to develop
ovarian cancer which is much less easy to detect and therefore much more
deadly. Thankfully I didn't test positive.

My mom died when she was32 and I miss her more than I can imagine. It makes
me so sad that she is gone, so I do this for her. After all, I tell my
husband, they are just boobs. I've used them to nurse my babies and I would
much rather have them gone than to have my kids go through life without a
mom.

On Sat, Sep 6, 2008 at 9:19 AM, Eliza <molinare13@yahoo.com> wrote:

> I asked this same question to my mother's doctor. I was curious because
> hers came back as not the gentetic type. What I took to mean of us not
> being at risk of having it passed on. When I asked the doctor the question,
> she was very frank and honest with me, and told me that in her opinion she
> didn't care what side or what test said what, she said all woman should be
> tested, and if you have a strong family history to get mammograms earlier.
>
> We should all be proactive in this. Our mother's, aunt and sisters are
> fighting on the battle field, and we should be the front lines. I'm very
> glad of the doctors honest opinion. Because in my head I thought I was
> safe, and that may not always be the case. I never even thought about
> breast cancer before my mother was diagnosed. We have no family history,
> she was not on hormonal therapy, it was just something that happened.
>
>
> --- On Thu, 9/4/08, quiltingdawn <quiltingdawn@yahoo.com<quiltingdawn%40yahoo.com>>
> wrote:
>
> From: quiltingdawn <quiltingdawn@yahoo.com <quiltingdawn%40yahoo.com>>
> Subject: Daughtersofmoms withBREASTCANCER My Family History
> To: daughtersofmomswithbreastcancer@yahoogroups.com<daughtersofmomswithbreastcancer%40yahoogroups.com>
> Date: Thursday, September 4, 2008, 6:20 PM
>
>
> Ten years go this october will be my mother's anniversary in which she
> was first told she had breast cancer (1998). Since then my sister was
> diagonised with the disease in 2001 and lost her battle in 2005 at the
> age of 39. Now my Aunt (mom's sister) is battleing the disease.
>
> Before she died, my sister found out that it was genetic and we are
> all being tested. I don't have the gene, my Aunt does and so does her
> daughter. We get my mother's results next Monday and we will also find
> out if her cancer is back. My Aunt has the same exact gene on the same
> chromisome as my sister, Identical. How do we find out where it
> originated if now on in the family was diagonised with it before my
> mother? Like what side of the family and who is at risk? My sister's
> daughters will be tested next year as they reasch adulthood.
> Thanks for any input.
>
> [Non-text portions of this message have been removed]
>
>
>