Sabtu, 06 September 2008

Re: Daughtersofmoms withBREASTCANCER Both operations successful =)

I am glad both operations went well. You have been in
my thoughts and prayers.

A big hug
Sabrina
--- Lesley <downboyrecords@yahoo.com> wrote:

> My mom is in St. David's central in Austin, Tx. 
>  
> Her first operation ended at 10:30pm on Thursday,
> the kept her in ICU ready to go, didn't wake her up,
> and the second one started at 9am the following
> day.  Both were around 6 hour operations, and both
> were successful, the first one the surgeon said went
> "really well" and the second one he said went
> "well."  Funny how you pick up on little differences
> in what the dr says, even if he didn't mean them to
> be different.  I guess the surgeon confided to my
> dad that he cried after the first one.  That is
> sweet, but it seems like surgeons would try not to
> get attached.  I have only seen mom for about a
> minute, in ICU, about 2 hours after the final
> surgery.  It hurts to see her that way, especially
> the amount of pain she was in, but I'm hoping to see
> her tomorrow.  She even said "damn" today, so that
> is a really good sign -- she never curses.
>  
> The best news is that a) the tumors on her spine are
> more localized than they thought; b) she is starting
> to be able to move one arms pretty well, the other
> is taking some time, but she can shrug her
> shoulders, which seems like a pretty big deal; and
> c) her pain levels have gone down enough that she is
> not on constant morphine.  She will be in the
> hospital for a couple more weeks at least.
>  
> Thanks for all your thoughts, prayers, and
> hugs....we all need support every once in a while,
> and it made all the difference for me and my family.
>  
> ((Huge Hugs))
>
> Lesley
>
> "A soul ought to have something to say to the
> universe if it's going to be immortal." 
> Sheri S. Tepper
>  
>
> "A nation that continues year after year to spend
> more money on military defense than on programs of
> social uplift is approaching spiritual doom."
> Dr. Martin Luther King Jr.
>
> --- On Fri, 9/5/08, Eliza <molinare13@yahoo.com>
> wrote:
>
> From: Eliza <molinare13@yahoo.com>
> Subject: Re: Daughtersofmoms withBREASTCANCER One
> down, one to go
> To: daughtersofmomswithbreastcancer@yahoogroups.com
> Date: Friday, September 5, 2008, 9:38 PM
>
>
>
>
>
>
> Oh good.  I was thinking about you guys today? Where
> is your mom at again?
>
> --- On Fri, 9/5/08, Lesley <downboyrecords@
> yahoo.com> wrote:
>
> From: Lesley <downboyrecords@ yahoo.com>
> Subject: Daughtersofmoms withBREASTCANCER One down,
> one to go
> To: daughtersofmomswith breastcancer@ yahoogroups.
> com
> Date: Friday, September 5, 2008, 8:05 AM
>
> I just heard from my dad.  The first operation, the
> riskier of the two, went extremely well according to
> the surgeon.  They kept mom in ICU with a breathing
> tube and did not wake her up, she will be having the
> second surgery this morning at 8am.  I spent most of
> last night having strange dreams and talking to
> her....sort of strange, but getting less so....
>  
> Thanks for being there, I love this group....
>
> Lesley
>
> "A soul ought to have something to say to the
> universe if it's going to be immortal." 
> Sheri S. Tepper
>  
>
> "A nation that continues year after year to spend
> more money on military defense than on programs of
> social uplift is approaching spiritual doom."
> Dr. Martin Luther King Jr.
>
> [Non-text portions of this message have been
> removed]
>
> [Non-text portions of this message have been
> removed]
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
> [Non-text portions of this message have been
> removed]
>
>

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Re: [cancercured] Re: To jcastron - American Cancer Society

Of course I am saying the Allopathic system has failed..........they are the ones proclaiming 'The War On Cancer'.

I did not infer that there is no hope in Alternative but rather, at the end, showed that unless people do an alternative protocol they are in serious trouble. There is almost no hope for the poor soul that develops metastasis and remains in the care of the conventional physician/oncologist/radiologist.

Joe C.

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[cancercured] Re:Fw: [Alkalizing4Health] Re: Baking Soda.

Thanks Nil.  Will do that.
 
Melly

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[cancercured] Re:anyone want the science and facts about glutethione and immunocal ?

When did you have your last chemo session?
 
Melly

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RE: Daughtersofmoms withBREASTCANCER I'm sorry to have to join this club...

You will be in my thoughts and prayers, Eliza, as you enter the next stage of dealing with this.  It sounds comforting for your mom, and I know God doesn't give us more than we can handle, though many days I don't feel strong enough to get through this.  Ultimately, we all will.


Lesley

"A soul ought to have something to say to the universe if it's going to be immortal." 
Sheri S. Tepper
 

"A nation that continues year after year to spend more money on military defense than on programs of social uplift is approaching spiritual doom."
Dr. Martin Luther King Jr.

--- On Sat, 9/6/08, Eliza <molinare13@yahoo.com> wrote:

From: Eliza <molinare13@yahoo.com>
Subject: RE: Daughtersofmoms withBREASTCANCER I'm sorry to have to join this club...
To: daughtersofmomswithbreastcancer@yahoogroups.com
Date: Saturday, September 6, 2008, 9:46 AM


Hey Angie,
 
I do live in Texas.  I knew someone said they took their mother to MD Anderson, but I could not remember who.  At her last appointment after joining the group, I sat in the lobby and saw a daughter with her family and wondered if it was any of you guys.  It actually made me feel better.  Knowing that we aren't alone in this.
 
My mom's doc is Dr. Andreopolu (I guess it's requirement to have a name you can't pronounce), but she is wonderful.  My mother is from East Houston and I live in the Sugarland/Richmond area.  She's is now living with us.
 
I read the same thing of our mother's from you guys, on how they are tacklling these tremendous obstacles.  I often wonder if I would be as strong.  But I think now, facing this situation, as hard as it can be, I feel I can do anything, and know I can get through this. 
 
I know my mom has the same worry.  What we will do when she is gone.  We have gotten to the point that she has decided to do Hospice care, which is scary and comforting at the same time.  Scary because I know she wants to stop fighting, comforting, because I know she won't have to get up all the time and wait for hours on end at these appointments, where she comes home wiped out just from waiting and going from one place to another. 
 
We talked about it last night over a romantic bowl of Chef Boyardee (I made it myself).  I could tell how relieved she was to be able to have this choice.  She's had a hard battle, and she fought hard.  And I don't think that however this ends that we will have lost.  What other time will I have the opportunity to wake up and see my mom's beautiful face, to care for her in such a way that she is only comfortable with a select few.  What other time will I be able to tell my mom how wonderful she is and be able to just sit with her and hold her hand.  I am truly honored. 
 
I carry my mom's strength with me everyday.  I feel like a have a secret weapon.  People around me are rushing through traffic, tapping thier feet in a rush at the grocery store, and I know they just don't know.  My mom is my strength, my shield, she has given me life and shown me how precious life can be.  I am eternally greatful.

--- On Fri, 9/5/08, Angie Henderson <zirjmom@gmail. com> wrote:

From: Angie Henderson <zirjmom@gmail. com>
Subject: RE: Daughtersofmoms withBREASTCANCER I'm sorry to have to join this club...
To: daughtersofmomswith breastcancer@ yahoogroups. com
Date: Friday, September 5, 2008, 9:40 AM

Eliza,

Do you live in Texas? I am blessed with a wonderful husband that is willing
to do what ever he can to make sure that Mom is taken care of. I am also
blessed that she has my Dad to support and care for her. He will have to
return to work soon, so I will be taking care of her during this time.

My Mom technically never had breast cancer-only breast cancer markers for
the cancer in her bones. She is treated at the breast center at MD
Anderson. Her official diagnosis is Metastatic Cancer with Unknown Primary.
Doctors (Dr Cristofanilli) have told her that she may have had a tumor, that
her body killed and absorbed. Unfortunately, not before it went to her
bones.

I've also learned that my mom is my hero and someone I strive to be like
everyday. I wish I had her strength.

I couldn't have said this better myself. My mom had to have a spinal tap to
rule out Lepto mets. They had to stick her 12 times. She did not complain,
or get angry. She said they were just trying to do their best (and they
were.)

Through all of this, she still manages to smile, and her greatest fear is
about what we will do without her.

Hugs,

Angie

From: daughtersofmomswith breastcancer@ yahoogroups. com
[mailto:daughtersof momswith breastcancer@ yahoogroups. com] On Behalf Of Eliza
Sent: Sunday, August 31, 2008 12:03 AM
To: daughtersofmomswith breastcancer@ yahoogroups. com
Subject: Re: Daughtersofmoms withBREASTCANCER I'm sorry to have to join this
club...

Hey Angie. I almost feel like we are twins. My mother is 52 and was
diagnosed about 3 years ago. My head has been constantly spinning since all
of this began. She had done chemotherapy, had a bilateral mastectomy and
then did radiation. They said that it was pretty aggressive so wanted to
start the chemo right away.

We were so happy when radiation was over and she got to "ring the bell" at
MD Anderson to signify her last visit. Little did we know that about 3
months later we would be right back there. It has progressed to stage IV
and has metastisized to her bones, mainly her pelvis, her spine, liver,
stomach and now some lung tissue. We recently brought her home from the
hospital and she is staying with my husband and I. I was so thrilled to
have her home, so happy to be away from all the constant visits.

I have such mixed emotions about all this. Right now I think I'm pissed
(pardon my french). Why did it have to come back. Why can't we get a
break?? You know I see those little commercials on TV of survivors and I get
so jealous and envious. Why can't we have that?

My mother is so young as well, and is my best friend. I have to stop myself
from calling her all the time like I used to. These days, unless the phone
is in her lap she cannot reach it. We're working on Physical therapy and
are improving a lilttle more each day.

I try so hard to be positive, but I find myself getting knocked down here
and there. I try my best to keep a happy face for my mom, a tear sneaks in
every now and again, as I'm sure it will, but I try my best to keep her in
postive spirits.

I know how it feels to have your best friend be hurting. It makes you want
to give anything to take that hurt away, even if it means you have to take
it yourself. I think in all of this, I've learned that every moment is
precious, I've learned a great deal of patience, and I've also learned that
my mom is my hero and someone I strive to be like everyday. I wish I had
her strength.

Please tell your mom we love her and you too. If we have to do it, we might
as well do it together.

Eliza

--- On Mon, 8/25/08, mizhenderson <zirjmom@gmail. com
<mailto:zirjmom% 40gmail.com> > wrote:

From: mizhenderson <zirjmom@gmail. com <mailto:zirjmom% 40gmail.com> >
Subject: Daughtersofmoms withBREASTCANCER I'm sorry to have to join this
club...
To: daughtersofmomswith breastcancer@ yahoogroups. com
<mailto:daughtersof momswithbreastca ncer%40yahoogrou ps.com>
Date: Monday, August 25, 2008, 5:12 PM

But I am glad that you are here.
My mom was diagnosed with BC Mets to her bones, and she has a couple
of spots on her liver that are questionable. It took super human
effort to get her diagnosed, because she does not have any evidence of
cancer in her breasts, or her lymph nodes. The way they found it was
breast cancer was to do a biopsy of her pelvic bone in an area that is
full of cancer. It came back positive for BC markers. It was a shock
and is very frightening.

Right now she is at MD Anderson in Houston. She is receiving
radiation on both of her hips, her left shoulder and the middle of her
spine. They tell her it is the worst case of bone disease that they
have ever seen. For years she thought it was arthritis. It would
have been better if she had actually had BC in her breast, because
then they would have known to look for mets instead of just insisting
that it was arthritis.

She will begin chemo once radiation is finished. Radiation has
provided a great relief from the pain, and it promises to continue to
do so. Of course, I am not naive or in denial and I know that she has
a terminal illness. I do not know however what the future may hold.
I am just trying to hold on to each day, let go of things that I
cannot control, and try to keep joy and normality in my life. My
Mother is my best friend, and she is only 54. I never in my wildest
thoughts would have guessed that I would have the possibility of
losing her at such an early age.

I am here to vent and join my fellow sisters in this fight for our
mother's lives. The good, the bad, the ugly. I've noticed it is slow
around here. I hope that more people are able to find their way here,
because sadly, there are alot of us out there.

Sincerly,
Angie

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]


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Re: Daughtersofmoms withBREASTCANCER My Family History

Even though there we have no family history, and mom has not been on hormonal therapy, my sister started out doing mammograms, and so I have had one every year since I was 38. Also, I get a full physical from both my family dr. and OB/GYN every year, and do self breast exams, though mom's tumor was about the size of an peanut, no shell. The scary part is that my mom's BC is not necessarily genetic, but it is very hormonal responsive.  Some of the problem with the bones she has had is due to taking hormone blockers, which tend to weaken the bones.  The bone builders don't seem to work as fast and ostoeporosis develops.
 
So, I agree, Eliza, you can't ever trust that you are "safe."


Lesley

"A soul ought to have something to say to the universe if it's going to be immortal." 
Sheri S. Tepper
 

"A nation that continues year after year to spend more money on military defense than on programs of social uplift is approaching spiritual doom."
Dr. Martin Luther King Jr.

--- On Sat, 9/6/08, Eliza <molinare13@yahoo.com> wrote:

From: Eliza <molinare13@yahoo.com>
Subject: Re: Daughtersofmoms withBREASTCANCER My Family History
To: daughtersofmomswithbreastcancer@yahoogroups.com
Date: Saturday, September 6, 2008, 9:19 AM


I asked this same question to my mother's doctor.  I was curious because hers came back as not the gentetic type.  What I took to mean of us not being at risk of having it passed on.  When I asked the doctor the question, she was very frank and honest with me, and told me that in her opinion she didn't care what side or what test said what, she said all woman should be tested, and if you have a strong family history to get mammograms earlier. 
 
We should all be proactive in this.  Our mother's, aunt and sisters are fighting on the battle field, and we should be the front lines.  I'm very glad of the doctors honest opinion.  Because in my head I thought I was safe, and that may not always be the case.  I never even thought about breast cancer before my mother was diagnosed.  We have no family history, she was not on hormonal therapy, it was just something that happened. 
 

--- On Thu, 9/4/08, quiltingdawn <quiltingdawn@ yahoo.com> wrote:

From: quiltingdawn <quiltingdawn@ yahoo.com>
Subject: Daughtersofmoms withBREASTCANCER My Family History
To: daughtersofmomswith breastcancer@ yahoogroups. com
Date: Thursday, September 4, 2008, 6:20 PM

Ten years go this october will be my mother's anniversary in which she
was first told she had breast cancer (1998). Since then my sister was
diagonised with the disease in 2001 and lost her battle in 2005 at the
age of 39. Now my Aunt (mom's sister) is battleing the disease.

Before she died, my sister found out that it was genetic and we are
all being tested. I don't have the gene, my Aunt does and so does her
daughter. We get my mother's results next Monday and we will also find
out if her cancer is back. My Aunt has the same exact gene on the same
chromisome as my sister, Identical. How do we find out where it
originated if now on in the family was diagonised with it before my
mother? Like what side of the family and who is at risk? My sister's
daughters will be tested next year as they reasch adulthood.
Thanks for any input.

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]


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RE: Daughtersofmoms withBREASTCANCER I'm sorry to have to join this club...

Lesa-
I struggle with guilt every day that I see my mom hurt.  I don't want to lose her, and even when I try to be realistic about everything, I still can't let her go yet.  If you don't feel comfortable telling your friends and co-workers, I would highly recommend counseling.  I see a therapist every two weeks, and talk to her on the phone more often, but it has helped so much to have someone to talk to, who is outside of my normal day to day interactions.
 
Most of my friends know, and I have let my co-workers know but there is a downside.  I had an interview on Friday for a job in our department that I would be really good at.  On the way to the interview, which started earlier than scheduled, one of the managers I would be supporting asked how my mom was.  I expected that from her, because she is insensitive in that way, but tears welled up in my eyes, and my mind went blank for the interview, even though I said she was doing ok and that it was not an appropriate time to talk about it.

Take care, and we are always here for you....((hugs))
 
Lesley

"A soul ought to have something to say to the universe if it's going to be immortal." 
Sheri S. Tepper
 

"A nation that continues year after year to spend more money on military defense than on programs of social uplift is approaching spiritual doom."
Dr. Martin Luther King Jr.

--- On Sat, 9/6/08, Lesmon S <lesmon_5@yahoo.com> wrote:

From: Lesmon S <lesmon_5@yahoo.com>
Subject: RE: Daughtersofmoms withBREASTCANCER I'm sorry to have to join this club...
To: daughtersofmomswithbreastcancer@yahoogroups.com
Date: Saturday, September 6, 2008, 6:04 AM


Dear Angie and Eliza,
 
I can't thank you both enough for being part of this group and I am so glad I joined.  I am very new at all of this (Mom was diagnosed about 4 weeks ago and had a double mastectomy on Wed).  I am trying to draw upon your strengths & hope and can certainly relate to the pain. Our Moms are our best friends.  I have not discussed my Mom with my friends or coworkers and my husband just keeps telling me "oh, she will be fine.....".  I feel so alone in all of this--except when I open my emails.
 
I can't help feeling selfish when I think of how I will live without her in my life.  It is unimaginable.  I sometimes have crept into my past and have called her Mommy.  It is just so comforting.
 
You are both in my daily thoughts and prayers as well as your Mom and families.
 
Thank you both and we are in this together.
 
Many many hugs,
 
Lesa

--- On Fri, 9/5/08, Angie Henderson <zirjmom@gmail. com> wrote:

From: Angie Henderson <zirjmom@gmail. com>
Subject: RE: Daughtersofmoms withBREASTCANCER I'm sorry to have to join this club...
To: daughtersofmomswith breastcancer@ yahoogroups. com
Date: Friday, September 5, 2008, 9:40 AM

Eliza,

Do you live in Texas? I am blessed with a wonderful husband that is willing
to do what ever he can to make sure that Mom is taken care of. I am also
blessed that she has my Dad to support and care for her. He will have to
return to work soon, so I will be taking care of her during this time.

My Mom technically never had breast cancer-only breast cancer markers for
the cancer in her bones. She is treated at the breast center at MD
Anderson. Her official diagnosis is Metastatic Cancer with Unknown Primary.
Doctors (Dr Cristofanilli) have told her that she may have had a tumor, that
her body killed and absorbed. Unfortunately, not before it went to her
bones.

I've also learned that my mom is my hero and someone I strive to be like
everyday. I wish I had her strength.

I couldn't have said this better myself. My mom had to have a spinal tap to
rule out Lepto mets. They had to stick her 12 times. She did not complain,
or get angry. She said they were just trying to do their best (and they
were.)

Through all of this, she still manages to smile, and her greatest fear is
about what we will do without her.

Hugs,

Angie

From: daughtersofmomswith breastcancer@ yahoogroups. com
[mailto:daughtersof momswith breastcancer@ yahoogroups. com] On Behalf Of Eliza
Sent: Sunday, August 31, 2008 12:03 AM
To: daughtersofmomswith breastcancer@ yahoogroups. com
Subject: Re: Daughtersofmoms withBREASTCANCER I'm sorry to have to join this
club...

Hey Angie. I almost feel like we are twins. My mother is 52 and was
diagnosed about 3 years ago. My head has been constantly spinning since all
of this began. She had done chemotherapy, had a bilateral mastectomy and
then did radiation. They said that it was pretty aggressive so wanted to
start the chemo right away.

We were so happy when radiation was over and she got to "ring the bell" at
MD Anderson to signify her last visit. Little did we know that about 3
months later we would be right back there. It has progressed to stage IV
and has metastisized to her bones, mainly her pelvis, her spine, liver,
stomach and now some lung tissue. We recently brought her home from the
hospital and she is staying with my husband and I. I was so thrilled to
have her home, so happy to be away from all the constant visits.

I have such mixed emotions about all this. Right now I think I'm pissed
(pardon my french). Why did it have to come back. Why can't we get a
break?? You know I see those little commercials on TV of survivors and I get
so jealous and envious. Why can't we have that?

My mother is so young as well, and is my best friend. I have to stop myself
from calling her all the time like I used to. These days, unless the phone
is in her lap she cannot reach it. We're working on Physical therapy and
are improving a lilttle more each day.

I try so hard to be positive, but I find myself getting knocked down here
and there. I try my best to keep a happy face for my mom, a tear sneaks in
every now and again, as I'm sure it will, but I try my best to keep her in
postive spirits.

I know how it feels to have your best friend be hurting. It makes you want
to give anything to take that hurt away, even if it means you have to take
it yourself. I think in all of this, I've learned that every moment is
precious, I've learned a great deal of patience, and I've also learned that
my mom is my hero and someone I strive to be like everyday. I wish I had
her strength.

Please tell your mom we love her and you too. If we have to do it, we might
as well do it together.

Eliza

--- On Mon, 8/25/08, mizhenderson <zirjmom@gmail. com
<mailto:zirjmom% 40gmail.com> > wrote:

From: mizhenderson <zirjmom@gmail. com <mailto:zirjmom% 40gmail.com> >
Subject: Daughtersofmoms withBREASTCANCER I'm sorry to have to join this
club...
To: daughtersofmomswith breastcancer@ yahoogroups. com
<mailto:daughtersof momswithbreastca ncer%40yahoogrou ps.com>
Date: Monday, August 25, 2008, 5:12 PM

But I am glad that you are here.
My mom was diagnosed with BC Mets to her bones, and she has a couple
of spots on her liver that are questionable. It took super human
effort to get her diagnosed, because she does not have any evidence of
cancer in her breasts, or her lymph nodes. The way they found it was
breast cancer was to do a biopsy of her pelvic bone in an area that is
full of cancer. It came back positive for BC markers. It was a shock
and is very frightening.

Right now she is at MD Anderson in Houston. She is receiving
radiation on both of her hips, her left shoulder and the middle of her
spine. They tell her it is the worst case of bone disease that they
have ever seen. For years she thought it was arthritis. It would
have been better if she had actually had BC in her breast, because
then they would have known to look for mets instead of just insisting
that it was arthritis.

She will begin chemo once radiation is finished. Radiation has
provided a great relief from the pain, and it promises to continue to
do so. Of course, I am not naive or in denial and I know that she has
a terminal illness. I do not know however what the future may hold.
I am just trying to hold on to each day, let go of things that I
cannot control, and try to keep joy and normality in my life. My
Mother is my best friend, and she is only 54. I never in my wildest
thoughts would have guessed that I would have the possibility of
losing her at such an early age.

I am here to vent and join my fellow sisters in this fight for our
mother's lives. The good, the bad, the ugly. I've noticed it is slow
around here. I hope that more people are able to find their way here,
because sadly, there are alot of us out there.

Sincerly,
Angie

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Daughtersofmoms withBREASTCANCER Both operations successful =)

My mom is in St. David's central in Austin, Tx. 
 
Her first operation ended at 10:30pm on Thursday, the kept her in ICU ready to go, didn't wake her up, and the second one started at 9am the following day.  Both were around 6 hour operations, and both were successful, the first one the surgeon said went "really well" and the second one he said went "well."  Funny how you pick up on little differences in what the dr says, even if he didn't mean them to be different.  I guess the surgeon confided to my dad that he cried after the first one.  That is sweet, but it seems like surgeons would try not to get attached.  I have only seen mom for about a minute, in ICU, about 2 hours after the final surgery.  It hurts to see her that way, especially the amount of pain she was in, but I'm hoping to see her tomorrow.  She even said "damn" today, so that is a really good sign -- she never curses.
 
The best news is that a) the tumors on her spine are more localized than they thought; b) she is starting to be able to move one arms pretty well, the other is taking some time, but she can shrug her shoulders, which seems like a pretty big deal; and c) her pain levels have gone down enough that she is not on constant morphine.  She will be in the hospital for a couple more weeks at least.
 
Thanks for all your thoughts, prayers, and hugs....we all need support every once in a while, and it made all the difference for me and my family.
 
((Huge Hugs))

Lesley

"A soul ought to have something to say to the universe if it's going to be immortal." 
Sheri S. Tepper
 

"A nation that continues year after year to spend more money on military defense than on programs of social uplift is approaching spiritual doom."
Dr. Martin Luther King Jr.

--- On Fri, 9/5/08, Eliza <molinare13@yahoo.com> wrote:

From: Eliza <molinare13@yahoo.com>
Subject: Re: Daughtersofmoms withBREASTCANCER One down, one to go
To: daughtersofmomswithbreastcancer@yahoogroups.com
Date: Friday, September 5, 2008, 9:38 PM


Oh good.  I was thinking about you guys today? Where is your mom at again?

--- On Fri, 9/5/08, Lesley <downboyrecords@ yahoo.com> wrote:

From: Lesley <downboyrecords@ yahoo.com>
Subject: Daughtersofmoms withBREASTCANCER One down, one to go
To: daughtersofmomswith breastcancer@ yahoogroups. com
Date: Friday, September 5, 2008, 8:05 AM

I just heard from my dad.  The first operation, the riskier of the two, went extremely well according to the surgeon.  They kept mom in ICU with a breathing tube and did not wake her up, she will be having the second surgery this morning at 8am.  I spent most of last night having strange dreams and talking to her....sort of strange, but getting less so....
 
Thanks for being there, I love this group....

Lesley

"A soul ought to have something to say to the universe if it's going to be immortal." 
Sheri S. Tepper
 

"A nation that continues year after year to spend more money on military defense than on programs of social uplift is approaching spiritual doom."
Dr. Martin Luther King Jr.

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[cancercured] Re: American Cancer Society

Sherry,
I thank you for at least trying to help. I too volunteer with ACS. I do help plan Norco, CA's relay for life. For me I see the other survivors rallying together to help others in our town. The "Corporate" might be big but the survivors are just ordinary people. We are the reason we gather together. Keep up the good work helping humans.


Lori  Patterson
 
(951) 741-7776
www.beautipage.com/spagirl_lori
 
Everyday is a " Spa " day...
Your pampering is just a call away
 
 


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[cancercured] Re: Attn Lori -- Need to talk to patients that were treated successf

Jill
I wish I could say I figured it out but no. I looked at my 2 reports, 1 from Feb. with biopsy and 1 June from my surgery. The tumor(s) are different. I believe I was on the right track to beat this without the surgery but I did not come to that conclusion until after surgery. I believe the 1st report was from the mamogram images and the biopsy. The 2nd report was from the actual tissue from my breast all 1468 grams. I hope this helps you. My best advise is to clean out your body as fast and as thorough as possible asap.


Lori  Patterson
 
(951) 741-7776
www.beautipage.com/spagirl_lori
 
Everyday is a " Spa " day...
Your pampering is just a call away
 
 


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Re: [cancercured] Has anyone heard of Camelot Cancer Care?

I've lived here forever, and have never heard of them. Who are the doctors connected to this clinic?
Gail

---- Jill <jwarnick2002@yahoo.com> wrote:
There web site is http://camelotcancercare.com They are in Tulsa, Ok. They treat cancer with
DMSO, Baking Soda, and Laetrile. I have talk to them but till you talk to people who have
gone I'm uncertain what to think.
Jill

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[cancercured] MMS Warning Before taking Protocol

Sorry, this is the website on MMS.
 
http://www.beating-cancer-gently.com/nl111.html

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[cancercured] OT: Oklahoma Clinic

The below website has some interesting articles about an Oklahoma Clinic and also warnings before taking the MMS therapy.  I am not sure of its accuracy so you be the judge and let us know your comments.
 
Melly
 
 
http://www.beating-cancer-gently.comOT

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RE: Daughtersofmoms withBREASTCANCER I'm sorry to have to join this club...

Oh, Eliza.
 
Your words below about your Mother are so beautiful.  You seem to take every thought I am thinking as well and put it on paper for me because I just can't seem to do that right now.  I feel like you are sitting in front of me and giving me the strength I just can't seem to find during all of this.   I need that strength and it feels very comforting.

Thank you for being here and sharing your life.

--- On Sat, 9/6/08, Eliza <molinare13@yahoo.com> wrote:

From: Eliza <molinare13@yahoo.com>
Subject: RE: Daughtersofmoms withBREASTCANCER I'm sorry to have to join this club...
To: daughtersofmomswithbreastcancer@yahoogroups.com
Date: Saturday, September 6, 2008, 9:46 AM

Hey Angie,
 
I do live in Texas.  I knew someone said they took their mother to MD Anderson, but I could not remember who.  At her last appointment after joining the group, I sat in the lobby and saw a daughter with her family and wondered if it was any of you guys.  It actually made me feel better.  Knowing that we aren't alone in this.
 
My mom's doc is Dr. Andreopolu (I guess it's requirement to have a name you can't pronounce), but she is wonderful.  My mother is from East Houston and I live in the Sugarland/Richmond area.  She's is now living with us.
 
I read the same thing of our mother's from you guys, on how they are tacklling these tremendous obstacles.  I often wonder if I would be as strong.  But I think now, facing this situation, as hard as it can be, I feel I can do anything, and know I can get through this. 
 
I know my mom has the same worry.  What we will do when she is gone.  We have gotten to the point that she has decided to do Hospice care, which is scary and comforting at the same time.  Scary because I know she wants to stop fighting, comforting, because I know she won't have to get up all the time and wait for hours on end at these appointments, where she comes home wiped out just from waiting and going from one place to another. 
 
We talked about it last night over a romantic bowl of Chef Boyardee (I made it myself).  I could tell how relieved she was to be able to have this choice.  She's had a hard battle, and she fought hard.  And I don't think that however this ends that we will have lost.  What other time will I have the opportunity to wake up and see my mom's beautiful face, to care for her in such a way that she is only comfortable with a select few.  What other time will I be able to tell my mom how wonderful she is and be able to just sit with her and hold her hand.  I am truly honored. 
 
I carry my mom's strength with me everyday.  I feel like a have a secret weapon.  People around me are rushing through traffic, tapping thier feet in a rush at the grocery store, and I know they just don't know.  My mom is my strength, my shield, she has given me life and shown me how precious life can be.  I am eternally greatful.

--- On Fri, 9/5/08, Angie Henderson <zirjmom@gmail. com> wrote:

From: Angie Henderson <zirjmom@gmail. com>
Subject: RE: Daughtersofmoms withBREASTCANCER I'm sorry to have to join this club...
To: daughtersofmomswith breastcancer@ yahoogroups. com
Date: Friday, September 5, 2008, 9:40 AM

Eliza,

Do you live in Texas? I am blessed with a wonderful husband that is willing
to do what ever he can to make sure that Mom is taken care of. I am also
blessed that she has my Dad to support and care for her. He will have to
return to work soon, so I will be taking care of her during this time.

My Mom technically never had breast cancer-only breast cancer markers for
the cancer in her bones. She is treated at the breast center at MD
Anderson. Her official diagnosis is Metastatic Cancer with Unknown Primary.
Doctors (Dr Cristofanilli) have told her that she may have had a tumor, that
her body killed and absorbed. Unfortunately, not before it went to her
bones.

I've also learned that my mom is my hero and someone I strive to be like
everyday. I wish I had her strength.

I couldn't have said this better myself. My mom had to have a spinal tap to
rule out Lepto mets. They had to stick her 12 times. She did not complain,
or get angry. She said they were just trying to do their best (and they
were.)

Through all of this, she still manages to smile, and her greatest fear is
about what we will do without her.

Hugs,

Angie

From: daughtersofmomswith breastcancer@ yahoogroups. com
[mailto:daughtersof momswith breastcancer@ yahoogroups. com] On Behalf Of Eliza
Sent: Sunday, August 31, 2008 12:03 AM
To: daughtersofmomswith breastcancer@ yahoogroups. com
Subject: Re: Daughtersofmoms withBREASTCANCER I'm sorry to have to join this
club...

Hey Angie. I almost feel like we are twins. My mother is 52 and was
diagnosed about 3 years ago. My head has been constantly spinning since all
of this began. She had done chemotherapy, had a bilateral mastectomy and
then did radiation. They said that it was pretty aggressive so wanted to
start the chemo right away.

We were so happy when radiation was over and she got to "ring the bell" at
MD Anderson to signify her last visit. Little did we know that about 3
months later we would be right back there. It has progressed to stage IV
and has metastisized to her bones, mainly her pelvis, her spine, liver,
stomach and now some lung tissue. We recently brought her home from the
hospital and she is staying with my husband and I. I was so thrilled to
have her home, so happy to be away from all the constant visits.

I have such mixed emotions about all this. Right now I think I'm pissed
(pardon my french). Why did it have to come back. Why can't we get a
break?? You know I see those little commercials on TV of survivors and I get
so jealous and envious. Why can't we have that?

My mother is so young as well, and is my best friend. I have to stop myself
from calling her all the time like I used to. These days, unless the phone
is in her lap she cannot reach it. We're working on Physical therapy and
are improving a lilttle more each day.

I try so hard to be positive, but I find myself getting knocked down here
and there. I try my best to keep a happy face for my mom, a tear sneaks in
every now and again, as I'm sure it will, but I try my best to keep her in
postive spirits.

I know how it feels to have your best friend be hurting. It makes you want
to give anything to take that hurt away, even if it means you have to take
it yourself. I think in all of this, I've learned that every moment is
precious, I've learned a great deal of patience, and I've also learned that
my mom is my hero and someone I strive to be like everyday. I wish I had
her strength.

Please tell your mom we love her and you too. If we have to do it, we might
as well do it together.

Eliza

--- On Mon, 8/25/08, mizhenderson <zirjmom@gmail. com
<mailto:zirjmom% 40gmail.com> > wrote:

From: mizhenderson <zirjmom@gmail. com <mailto:zirjmom% 40gmail.com> >
Subject: Daughtersofmoms withBREASTCANCER I'm sorry to have to join this
club...
To: daughtersofmomswith breastcancer@ yahoogroups. com
<mailto:daughtersof momswithbreastca ncer%40yahoogrou ps.com>
Date: Monday, August 25, 2008, 5:12 PM

But I am glad that you are here.
My mom was diagnosed with BC Mets to her bones, and she has a couple
of spots on her liver that are questionable. It took super human
effort to get her diagnosed, because she does not have any evidence of
cancer in her breasts, or her lymph nodes. The way they found it was
breast cancer was to do a biopsy of her pelvic bone in an area that is
full of cancer. It came back positive for BC markers. It was a shock
and is very frightening.

Right now she is at MD Anderson in Houston. She is receiving
radiation on both of her hips, her left shoulder and the middle of her
spine. They tell her it is the worst case of bone disease that they
have ever seen. For years she thought it was arthritis. It would
have been better if she had actually had BC in her breast, because
then they would have known to look for mets instead of just insisting
that it was arthritis.

She will begin chemo once radiation is finished. Radiation has
provided a great relief from the pain, and it promises to continue to
do so. Of course, I am not naive or in denial and I know that she has
a terminal illness. I do not know however what the future may hold.
I am just trying to hold on to each day, let go of things that I
cannot control, and try to keep joy and normality in my life. My
Mother is my best friend, and she is only 54. I never in my wildest
thoughts would have guessed that I would have the possibility of
losing her at such an early age.

I am here to vent and join my fellow sisters in this fight for our
mother's lives. The good, the bad, the ugly. I've noticed it is slow
around here. I hope that more people are able to find their way here,
because sadly, there are alot of us out there.

Sincerly,
Angie

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]


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Re: Daughtersofmoms withBREASTCANCER My Family History

I am going through this now. I absolutely found the genetic counselor
amazing and really helpful. I tested negative for the 2 genes in both the
basic and also the arrangement test.
I was shocked to learn some risk factors, and learn about things that are
bad. For instance the amount of estrogen in your body, and also the amount
of soy you intake(it replicates estrogen)

That being said I am still at extremely high risk for cancer. I have been
asked to go to a oncologist to see about going on tamoxafin(SP). In
addition I was asked to do mammograms coupled with an sonogram every 6
months and doing an MRI every 6 months but to stagger them so I am being
checked every 3 months. I was also told to make plans to have any other
kids ASAP.

Part of me wishes that I didn't test, it left too many huge gaps. After all
they only test 2 of the 5 known genes at the moment. I plan to talk to the
oncologist about a double mastectomy, I can't imagine medications, and I
really can't imagine going and having testing done every 3 months.

I learned that the carrier of the BRACA 2 gene is 80% more likely to develop
ovarian cancer which is much less easy to detect and therefore much more
deadly. Thankfully I didn't test positive.

My mom died when she was32 and I miss her more than I can imagine. It makes
me so sad that she is gone, so I do this for her. After all, I tell my
husband, they are just boobs. I've used them to nurse my babies and I would
much rather have them gone than to have my kids go through life without a
mom.


On Sat, Sep 6, 2008 at 9:19 AM, Eliza <molinare13@yahoo.com> wrote:

> I asked this same question to my mother's doctor. I was curious because
> hers came back as not the gentetic type. What I took to mean of us not
> being at risk of having it passed on. When I asked the doctor the question,
> she was very frank and honest with me, and told me that in her opinion she
> didn't care what side or what test said what, she said all woman should be
> tested, and if you have a strong family history to get mammograms earlier.
>
> We should all be proactive in this. Our mother's, aunt and sisters are
> fighting on the battle field, and we should be the front lines. I'm very
> glad of the doctors honest opinion. Because in my head I thought I was
> safe, and that may not always be the case. I never even thought about
> breast cancer before my mother was diagnosed. We have no family history,
> she was not on hormonal therapy, it was just something that happened.
>
>
> --- On Thu, 9/4/08, quiltingdawn <quiltingdawn@yahoo.com<quiltingdawn%40yahoo.com>>
> wrote:
>
> From: quiltingdawn <quiltingdawn@yahoo.com <quiltingdawn%40yahoo.com>>
> Subject: Daughtersofmoms withBREASTCANCER My Family History
> To: daughtersofmomswithbreastcancer@yahoogroups.com<daughtersofmomswithbreastcancer%40yahoogroups.com>
> Date: Thursday, September 4, 2008, 6:20 PM
>
>
> Ten years go this october will be my mother's anniversary in which she
> was first told she had breast cancer (1998). Since then my sister was
> diagonised with the disease in 2001 and lost her battle in 2005 at the
> age of 39. Now my Aunt (mom's sister) is battleing the disease.
>
> Before she died, my sister found out that it was genetic and we are
> all being tested. I don't have the gene, my Aunt does and so does her
> daughter. We get my mother's results next Monday and we will also find
> out if her cancer is back. My Aunt has the same exact gene on the same
> chromisome as my sister, Identical. How do we find out where it
> originated if now on in the family was diagonised with it before my
> mother? Like what side of the family and who is at risk? My sister's
> daughters will be tested next year as they reasch adulthood.
> Thanks for any input.
>
> [Non-text portions of this message have been removed]
>
>
>


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[cancercured] Has anyone heard of Camelot Cancer Care?

There web site is http://camelotcancercare.com They are in Tulsa, Ok. They treat cancer with
DMSO, Baking Soda, and Laetrile. I have talk to them but till you talk to people who have
gone I'm uncertain what to think.
Jill


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[cancercured] A cure for breast cancer?

I was doing some research on silver, and found a medical study that says
that injections of tetrasilver textroxide cured 30 women in Central
America. I couldn't locate the study, but here's where I saw it, it's
the first study mentioned:
http://www.silvermedicine.org/medical-doctors-silver.html
I clicked on "reference" but my computer said it "couldn't find."
I thought all the people with this disease would want to know. Hope you
can find the original study, I couldn't.
Ellen

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Re: [cancercured] Re: American Cancer Society

There is no product that will cure cancer.
Actually there is no product that will cure anything.
The human body is a self-healing entity, and it works just fine, except when a disease reaches final stages.
A cure for cancer does not come in a package. It never will.
It does not involve a medical procedure. That will never happen either.

I, personally have had a 100% success rate in curing cancer; and have never done enough work to send anyone a bill.
The recent case was bowel cancer that took 4 years of slow remission; but we wound up with a cure rather than the usual horrible death.
A case of stomach cancer, well documented by the Faulkner Hospital in Boston, was cured in a few months while avoiding medical intervention.
(Case history found on the medicine-no website).
The cure for cancer does not require great study, it does not require a book or even a long paragraph.
There is nothing to buy. Sadly for the medical industry, nothing to sell.
The cure is so simple there is no profit to be made; and therefore, completely rejected by the medical authorities and by a brainwashed general public.
The cure for most cancer is simply to eliminate the cause and create an alkaline environment within the body where cancer cells cannot survive. See http://www.essense-of-life.com/moreinfo/foodcharts.htm. Anything that depresses the immune system, such as acidic foods, drugs or other morbid matter, radiaton, x-rays, biopsies and other invasive or harmful products or procedures can be cancer causing.

Bob Catalano


From: JCastron
Sent: Saturday, September 06, 2008 13:22: VIRUS ALERT!

A very disturbing part of the sham being perpetrated upon the people is the hope that is generated and for a failing system.

The War On Cancer has been lost, not this year, not last year, but ever since it was started.

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Re: [cancercured] Re: To jcastron - American Cancer Society

I'm not sure of your point here.  Are you saying that alternatives work but alopathic doesn't, or are you saying that most of the time neither one of them will work?   Jan

--- On Sat, 9/6/08, JCastron <jcastron1@comcast.net> wrote:

A very disturbing part of the sham being perpetrated upon the people is the hope that is generated and for a failing system.
The War On Cancer has been lost, not this year, not last year, but ever since it was started.
Yes a couple of cancers have become 'manageable' but these are cancer also manageable alternatively.

There are also cancers that affect areas of the body that often have poor prognosis but because these cancers may not have mortality involved, become the 'success' stories we read about. An example would be Prostate Cancer that was fully contained within the testes.
...[snip]...
This would be even more frightening if there were no alternative measures that could be taken. The sad thing is that millions of cases of such Metastasis will develop and for which these people have no hope unless they stumble upon people doing things alternatively.[snip]

Joe C.


[Non-text portions of this message have been removed]


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Re: [cancercured] Re:Anyone try this?

tita_mel@yahoo.com writes:

> and gum inflammation

I bought some CS from a reputable company and applied it to my dog's gums and
it didn't help at all..>I applied it to an infection and it didn't do
anything..I have lost my faith in this product.


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Re: [cancercured] Fw: [Alkalizing4Health] Re: Baking Soda.

waikikilights@yahoo.com writes:

> That was where the original message was from, and it was lifted (with
> permission) and placed in cancercured. But it's an alkalizing4health thing.
>

Since the person is a member of both groups he could post the protocol here for all of us..I don't know about you but I have more than enough groups that I can handle on my plate.


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Re: [cancercured] Re: American Cancer Society

A very disturbing part of the sham being perpetrated upon the people is the hope that is generated and for a failing system.

The War On Cancer has been lost, not this year, not last year, but ever since it was started.

Yes a couple of cancers have become 'manageable' but these are cancer also manageable alternatively.

There are also cancers that affect areas of the body that often have poor prognosis but because these cancers may not have mortality involved, become the 'success' stories we read about. An example would be Prostate Cancer that was fully contained within the testes.

Many of us have read of or at least heard of the study by Australian Oncologists that state clearly, "Chemotherapy is not working and something different is needed"..........or words to that effect. When I read a study by physicians that also stated clearly, "all breast cancer metastasis is palliative", I was astounded that this admission was made. This is clear in that they hold no hope for long-term survival in such cases. The problem with this study is that it was completely ignored by American main-stream media and The American Medical Association.

This would be even more frightening if there were no alternative measures that could be taken. The sad thing is that millions of cases of such Metastasis will develop and for which these people have no hope unless they stumble upon people doing things alternatively. Put aside the regular use of terms like, "Americans are lazy and only want to take a pill" because, while true in some cases, peoples that world over are bombarded at birth that their only hope is the allopathic physician. Much of this from the story-tellers at The American Cancer Society just as the propagandists of The American Heart Association twist the truth they throw at heart patients.

For those of us that do want to learn and study, we should also be in touch with people that work with cancer patients and know what works and what doesn't. What I don't want is a temporary state of remission because of some dramatic change but rather long-term remission so that I can continue on for a long and healthy life. Quality of life is critical to me and I will not expose myself to the cut, burn, poison of conventional medicine except to correct something mechanical. Goji juice just doesn't do anything for a wound.

Joe C.

Joe C.

[Non-text portions of this message have been removed]


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Re: [cancercured] Fw: [Alkalizing4Health] Re: Baking Soda.

I don't think this has anything to do with the flaxseed group except maybe some people from flaxseed read it.  If anyone wants more information on the baking soda plan they need to join alkalizing4health.  It's all there.  That was where the original message was from, and it was lifted (with permission) and placed in cancercured.  But it's an alkalizing4health thing.

--- On Sat, 9/6/08, VINCENT TOKATLIAN <vttttt@verizon.net> wrote:

From: VINCENT TOKATLIAN <vttttt@verizon.net>
Subject: Re: [cancercured] Fw: [Alkalizing4Health] Re: Baking Soda.
To: cancercured@yahoogroups.com
Date: Saturday, September 6, 2008, 12:38 PM


My emials to this guy were rejected, since I 'dont belong to this group' flaxoil@yahoo. com ???

----- Original Message -----
From: VINCENT TOKATLIAN
.

Great..How much b soda per day? And how much molases with the b soda? And or how many days/months?
BTW, I found it very salty...what about using Alka seltzer..the kind that only has aspirin and citric acid , and none of the other drugs?


[Non-text portions of this message have been removed]


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[cancercured] Re: Need to talk to patients that were treated suCcessfully w/ alter

I've heard of a urine test (the same one that tests for pregnancy) that reliably tests for cancer, as well. I don't have the address any more, but you can get it from cancertutor.com. My wife has "successfully" treated her cancer (so far so good, anyway) with a whole slew of medicines by a German company calle Heel. She sees a doctor in Mexico. It's been two years since she was diagnosed and her tumor has shrunk considerably. Her tumor markers a year ago were negative and she had by then gone from stage 1 to stage zero. But when it comes to cancer you can never say you're cured for sure.

[Non-text portions of this message have been removed]


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Re: [cancercured] Fw: [Alkalizing4Health] Re: Baking Soda.

My emials to this guy were rejected, since I 'dont belong to this group' flaxoil@yahoo.com ???

----- Original Message -----
From: VINCENT TOKATLIAN
.


Great..How much b soda per day? And how much molases with the b soda? And or how many days/months?
BTW, I found it very salty...what about using Alka seltzer..the kind that only has aspirin and citric acid , and none of the other drugs?

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Re: [cancercured] Re: American Cancer Society

Great
----- Original Message -----
From: Sherry
To: cancercured@yahoogroups.com
Sent: Saturday, September 06, 2008 09:57: VIRUS ALERT!
Subject: [cancercured] Re: American Cancer Society


Thanks for the links that you all sent. After reading your posts I have changed the benificiary for the event. I have decided to give the money directly to two families who are suffering financially due to thier treatments. I put a picture and link to one of the people. He is a little boy named Colson. I don't have the info yet to put up about the other person.
I have also sent the link to several other people who are very upset about the ACS.

~Sherry

[Non-text portions of this message have been removed]


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RE: Daughtersofmoms withBREASTCANCER I'm sorry to have to join this club...

Hey Angie,
 
I do live in Texas.  I knew someone said they took their mother to MD Anderson, but I could not remember who.  At her last appointment after joining the group, I sat in the lobby and saw a daughter with her family and wondered if it was any of you guys.  It actually made me feel better.  Knowing that we aren't alone in this.
 
My mom's doc is Dr. Andreopolu (I guess it's requirement to have a name you can't pronounce), but she is wonderful.  My mother is from East Houston and I live in the Sugarland/Richmond area.  She's is now living with us.
 
I read the same thing of our mother's from you guys, on how they are tacklling these tremendous obstacles.  I often wonder if I would be as strong.  But I think now, facing this situation, as hard as it can be, I feel I can do anything, and know I can get through this. 
 
I know my mom has the same worry.  What we will do when she is gone.  We have gotten to the point that she has decided to do Hospice care, which is scary and comforting at the same time.  Scary because I know she wants to stop fighting, comforting, because I know she won't have to get up all the time and wait for hours on end at these appointments, where she comes home wiped out just from waiting and going from one place to another. 
 
We talked about it last night over a romantic bowl of Chef Boyardee (I made it myself).  I could tell how relieved she was to be able to have this choice.  She's had a hard battle, and she fought hard.  And I don't think that however this ends that we will have lost.  What other time will I have the opportunity to wake up and see my mom's beautiful face, to care for her in such a way that she is only comfortable with a select few.  What other time will I be able to tell my mom how wonderful she is and be able to just sit with her and hold her hand.  I am truly honored. 
 
I carry my mom's strength with me everyday.  I feel like a have a secret weapon.  People around me are rushing through traffic, tapping thier feet in a rush at the grocery store, and I know they just don't know.  My mom is my strength, my shield, she has given me life and shown me how precious life can be.  I am eternally greatful.

--- On Fri, 9/5/08, Angie Henderson <zirjmom@gmail.com> wrote:

From: Angie Henderson <zirjmom@gmail.com>
Subject: RE: Daughtersofmoms withBREASTCANCER I'm sorry to have to join this club...
To: daughtersofmomswithbreastcancer@yahoogroups.com
Date: Friday, September 5, 2008, 9:40 AM


Eliza,

Do you live in Texas? I am blessed with a wonderful husband that is willing
to do what ever he can to make sure that Mom is taken care of. I am also
blessed that she has my Dad to support and care for her. He will have to
return to work soon, so I will be taking care of her during this time.

My Mom technically never had breast cancer-only breast cancer markers for
the cancer in her bones. She is treated at the breast center at MD
Anderson. Her official diagnosis is Metastatic Cancer with Unknown Primary.
Doctors (Dr Cristofanilli) have told her that she may have had a tumor, that
her body killed and absorbed. Unfortunately, not before it went to her
bones.

I've also learned that my mom is my hero and someone I strive to be like
everyday. I wish I had her strength.

I couldn't have said this better myself. My mom had to have a spinal tap to
rule out Lepto mets. They had to stick her 12 times. She did not complain,
or get angry. She said they were just trying to do their best (and they
were.)

Through all of this, she still manages to smile, and her greatest fear is
about what we will do without her.

Hugs,

Angie

From: daughtersofmomswith breastcancer@ yahoogroups. com
[mailto:daughtersofmomswith breastcancer@ yahoogroups. com] On Behalf Of Eliza
Sent: Sunday, August 31, 2008 12:03 AM
To: daughtersofmomswith breastcancer@ yahoogroups. com
Subject: Re: Daughtersofmoms withBREASTCANCER I'm sorry to have to join this
club...

Hey Angie. I almost feel like we are twins. My mother is 52 and was
diagnosed about 3 years ago. My head has been constantly spinning since all
of this began. She had done chemotherapy, had a bilateral mastectomy and
then did radiation. They said that it was pretty aggressive so wanted to
start the chemo right away.

We were so happy when radiation was over and she got to "ring the bell" at
MD Anderson to signify her last visit. Little did we know that about 3
months later we would be right back there. It has progressed to stage IV
and has metastisized to her bones, mainly her pelvis, her spine, liver,
stomach and now some lung tissue. We recently brought her home from the
hospital and she is staying with my husband and I. I was so thrilled to
have her home, so happy to be away from all the constant visits.

I have such mixed emotions about all this. Right now I think I'm pissed
(pardon my french). Why did it have to come back. Why can't we get a
break?? You know I see those little commercials on TV of survivors and I get
so jealous and envious. Why can't we have that?

My mother is so young as well, and is my best friend. I have to stop myself
from calling her all the time like I used to. These days, unless the phone
is in her lap she cannot reach it. We're working on Physical therapy and
are improving a lilttle more each day.

I try so hard to be positive, but I find myself getting knocked down here
and there. I try my best to keep a happy face for my mom, a tear sneaks in
every now and again, as I'm sure it will, but I try my best to keep her in
postive spirits.

I know how it feels to have your best friend be hurting. It makes you want
to give anything to take that hurt away, even if it means you have to take
it yourself. I think in all of this, I've learned that every moment is
precious, I've learned a great deal of patience, and I've also learned that
my mom is my hero and someone I strive to be like everyday. I wish I had
her strength.

Please tell your mom we love her and you too. If we have to do it, we might
as well do it together.

Eliza

--- On Mon, 8/25/08, mizhenderson <zirjmom@gmail. com
<mailto:zirjmom% 40gmail.com> > wrote:

From: mizhenderson <zirjmom@gmail. com <mailto:zirjmom% 40gmail.com> >
Subject: Daughtersofmoms withBREASTCANCER I'm sorry to have to join this
club...
To: daughtersofmomswith breastcancer@ yahoogroups. com
<mailto:daughtersof momswithbreastca ncer%40yahoogrou ps.com>
Date: Monday, August 25, 2008, 5:12 PM

But I am glad that you are here.
My mom was diagnosed with BC Mets to her bones, and she has a couple
of spots on her liver that are questionable. It took super human
effort to get her diagnosed, because she does not have any evidence of
cancer in her breasts, or her lymph nodes. The way they found it was
breast cancer was to do a biopsy of her pelvic bone in an area that is
full of cancer. It came back positive for BC markers. It was a shock
and is very frightening.

Right now she is at MD Anderson in Houston. She is receiving
radiation on both of her hips, her left shoulder and the middle of her
spine. They tell her it is the worst case of bone disease that they
have ever seen. For years she thought it was arthritis. It would
have been better if she had actually had BC in her breast, because
then they would have known to look for mets instead of just insisting
that it was arthritis.

She will begin chemo once radiation is finished. Radiation has
provided a great relief from the pain, and it promises to continue to
do so. Of course, I am not naive or in denial and I know that she has
a terminal illness. I do not know however what the future may hold.
I am just trying to hold on to each day, let go of things that I
cannot control, and try to keep joy and normality in my life. My
Mother is my best friend, and she is only 54. I never in my wildest
thoughts would have guessed that I would have the possibility of
losing her at such an early age.

I am here to vent and join my fellow sisters in this fight for our
mother's lives. The good, the bad, the ugly. I've noticed it is slow
around here. I hope that more people are able to find their way here,
because sadly, there are alot of us out there.

Sincerly,
Angie

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]


[Non-text portions of this message have been removed]


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