they took out 3 tumors from my bladder, TURP surgery, and one was "aggressive" and usually comes usually comes back,said the URO, , and if it does, we'll have to remove the whole bladder.From what he said, plus reading his report, it implied that he HAD taken it all out.. His report said "all tisues were removed to be sent to pathology...the base wall was fulgurated (?). and the base wall was grossly clean...:" He said come back in 3 months for another cyto exam, unles it starts bleeding again.
They had done Xrays, EKGs blood ,urine, tests, etc, including a cat scanof the entire abdominal area from the stomach on down, including the blood vessels (they shot iodine into my veins) and nothing re cancer showed up anywhere else...just " a large gallstone or polyp on the gallbaldeder'..
Also the biopsy said "this was a transitional ca, high grade 3-4/4..it hd invaded the lamina propria..there was no musclurais priopria tissue identified for evaluation:"
So that sounded good, in that IF the URO had taken it all out, and muscle tissue was taken, at lesat ithd nOT invaded muscle (which is more seious)
So i asked him "shoudn't I do something for prevention..maybe see an oncologist?" He said Ok, and rfereed me to an ONCO at county hopsital ( I odnt have insurance,so this a county health program)
in the interim I did a lot of resaech..at auanet.org ( utology assn) website it said this T1 ca was still "superficial",a nd the preffered treatment was TUTP PLUS BCG thru a catheter. Other URO sites said it was the best and least expensive and minimally invasive tech. some say 80$ success rate ..better than whole body chemo, which is 50% or LESS..Also I hea of a drug called EOQUIN that be put in a catheter
Also pubmed.org which does a lot of research says that cyto exam is 95% accureat re detecting bladder tumors, plus a blood test called NMP22 ( I believe) is 85% accurate AND if combined with a cytology urine test its 91% sensitive
Also i reda about other minimally invasive thing s like Retinoid to boost the immune system plus UKRAIN, but supposedly its not available in the US
So ihave all these positive ideas plus the monitoring tests in mind..then the ONCO shot it all down !!I odnt thinkprofit was her motive, since she is just an emploee at this county hospital, but she semed raher youn for an ONCo ) maybe early thirties),and maybe over zealous. Also she had not talked with the URO yet, just read the reports... Also she said "Dr C sent yoy to me because you have bladder ca.." she did not knwo that it was I who had asked to se an ONCo to see what i ocul do re prevention!!
She asid "bladder is BAD, its sneaky...some cells may have already escaped....we'll have to do 6 sssions of chemo (Cisplatin and Gemcitibine??..One week 6 hours next week 2 houirs, then rest for a week, then repeat the cycle 2 more times ..also you may need radiation, and we'll still ahve to remove the bladder.
----- Original Message -----
From: STUDIO EEG-BIOFEEDBACK_POLAND
Hi Jane,..(dr Kumar : Will be necessary Your knowledge and opinion )
In fact, is so as you wrote:
I can't seem to find much info on what can and cannot be taken with Chemo.
Here result my researches(seek):
a) Activities synergy to cisplatiino - derivatives( also Carboplatin )
- Juice from cranberry. To drink: 300 ml 1 day before chemo, 500 ml in day chemo,
500 ml 1 day after chemo, 300 ml 2 days after chemo.
- Oil from Oenothera Biennis (GLA): 3x1ml 1 day before chemo, 3x1.5 ml in day chemo,
3x1ml 5-7 day after chemo
b) Immunocall,ImuPlus - Enlarge level Glutathione.
Opinions of research workers are different:
one write, that this {then} helps in chemo, oncologists, that hinders...........<snip>
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