BCG, which is an immunotherapy and not chemo in the sense we usually think of it. It is instilled into the bladder not into our veins and entire system. It is a topical treatment that is 'supposed' to kick-start the immune system in the bladder area. It does have some good reports about it. However it also has some negative reports and many suggest that one might limit its use to two applications.
It is not unusual for tumors to return after a course of BCG and that is why some will try two courses.
Apparently they are suggesting a 'mapping' (biopsy) of the bladder in your case after the BCG. When my Uro suggested that I resisted and told him I didn't want the risk of 'seeding' and he agreed it is a possibility but that he would use a lot of water to flush the bladder to minimize the 'seeding'.
Do you know what the risk of having cancer cells seeding? It's 100% for the person it happens to.
I would not allow it nor would I allow them to do further CT-Scans to determine whether or not the cancer has moved up the tubes. When asked what he would do if such a test resulted in evidence it has, the Uro said, "then everything comes out". That's the bladder, prostate, tubes.... My response was, "that will never be an option".
Why would I risk spreading cancer cells by allowing a 'mapping' of the bladder and still have the possibility they could miss the cancer if it existed?
My last CT-Scan of the bladder revealed nothing, nor did the Cystoscope or the AMAS test....but a lowly Urine Cytology indicated cancer cells. Three months later a cystoscope exam revealed the tumor..........small, but there. That was two years ago.
two years ago. Another concern of mine is excessive use of the catheter which I did have because of difficulty instilling the BCG. Squamus Cell Bladder Cancer has been linked to Catheter use because of the irritations and folks, you don't want a squamus cell cancer of the bladder. I know a young man that had the Cystectomy after a lot of self catheterization who developed Squamus C and he didn't survive.
In any event one is always faced with choices and must decide what course of action to take and what limits they will put on the physician. I am persuaded that the Urology field is 'loose' to say the least and that there is too much variation in treatment protocols.
For sure I would examine the use of the Oncovite formula if I was going to have BCG done. That is Dr. Lamm's high-vitamin protocol designed to go with the BCG treatment. I'll bet your Uro doesn't suggest it and probably doesn't know about it. Mine didn't and this is a well-respected team in South Florida. I followed the formula myself without using Oncovite which is a commercial blend Lamm uses.
Good luck,
Joe C.
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