I think it is the ONCO who got it wrong. She had NOT talked to the URO, but had just read some reports, and when I aaid I thought the uRO took it all out, she said "they cant take it all out, they just take some out for a biopsy"..
I think if that was true, the URO would have said so.
Anyway, i am writing the URO plus will ask to see him again, to get it from the horses mouth as to whether he took it all out.
IF he did, and there was no invasion of muscle tissue, then the Amer. Uro Assn clasifies this as a T1 ca, which is still SUPERFICIAL, and TURP (which was done) and BCG is the recommendation, plus monitoring it with cytospcic exame
From: JCastron
This is from personal experience and lots of research.
Someone is out of sync here. BCG is one of the effective treatments for people with Bladder Cancer.
It does not, however, kill tumors but rather is supposed to stimulate the immune system into action to prevent further recurrences. Not always effective.
Additionally it has always been my understanding that BCG would not be used when a tumor is present.
The entire Urology field is upside down from what I read. You need to do a lot of research and look for a Dr. Lamm, one of the nation's leading Urologists for solid information, albeit, conventional with some vitamin protocol when doing BCG.
I am shocked they did a biopsy and did not remove the tumor/s. This is exactly what we want to avoid, proving and slicing into a tumor and leaving it to seed cells. The biopsy comes after the complete resection and proper grading done as a result.
As for removal of the bladder? When they do that, they will also take the prostate and a 'new' bladder will be built. My response to my Urologist when that was a 'future' procedure? 'Sorry, that is not going to be an option'.
There is no guarantee that the cancer will not come back and metastasize and when one reads all of the studies, one finds that after you weed out the propaganda, you find that survivability is not enhanced enough to warrant such a drastic measure as removal of the bladder, prostate, and some tubing. Not for me thanks.
It seems to me you should be getting back to that surgeon/urologist asking why he/she did not remove the tumor/s when in there? I would suggest before you do that, you get a complete set of your medical records, every blood test and the results of every cystoscopy and the TURP if that was done. Everyone should get the report for every test and procedure. They are required to provide that and don't accept a denial.
Good luck and you can beat this thing.....but you need to study and get information from people that know what works and what does not.
Joe C.
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